Category Archives: Uncategorized

For decades women whose blood had a clotting deficiency were told even by some care providers that they could not be haemophiliacs. WRONG! Although most haemophiliacs with the inherited bleeding disorder are men, there are female haemophiliacs too, though only … Continue reading →

On Friday the 28th July 2022, Susan Deacon gave evidence to the Infected Blood Inquiry chaired by Sir Brian Langstaff which is investigating how haemophiliacs became infected with HIV and hepatitis viruses through their factor concentrate, blood product treatment in … Continue reading →

The author of this post Carol Grayson (Haemophilia Action UK) and her colleague Colette Wintle (Independent campaigner) both of whom have fought for decades for the victims of what Lord Winston called “the worst medical treatment disaster in the history … Continue reading →

When the privately funded Archer Inquiry concluded with a final report in 2009, Lord Archer of Sandwell recognized the importance of haemophiliacs being compensated for ALL viruses. The Inquiry was set up to investigate how thousands of haemophiliacs with an … Continue reading →

Earlier this year, experts on variant Creutzfeldt-Jakob Disease (v CJD) gave evidence at the Infected Blood Inquiry in relation to haemophiliacs with an inherited bleeding disorder who were exposed to the prion disease through administration of UK factor concentrate treatment, … Continue reading →

Dear Kate (Burt) Yesterday Baroness Virginia Bottomley gave evidence to the Infected Blood Inquiry as Minister of State (1989-1992) and Secretary of State for Health (1992-1995). The Haemophilia Society Public Inquiry Team Account on Twitter tweeted, Baroness Bottomley said in … Continue reading →

For haemophilia campaigners that were active on contaminated blood in the 1990s, they will not have forgotten why the word “compensation” is so important and has itself become a verbal battle ground with government. Haemophiliacs were infected with HIV and … Continue reading →

The North-East of England has a long tradition of activism on human rights, truth and justice from the Jarrow March in 1936 against unemployment and poverty to the ongoing Show Racism the Red Card, the UK’s leading anti racist charity … Continue reading →

I note the release of the Sir Robert Francis Report looking at a compensation framework for victims of the Contaminated Blood scandal. I thank those involved but urge caution. Some long standing campaigners have yet to give evidence to the … Continue reading →

For longstanding haemophilia campaigners that lived through and researched the emergence of the AIDS virus in the early 1980s, it is impossible to forget the delays and denials regarding plasma safety and the alleged incompetence and negligence in terms of … Continue reading →